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Qualifying Conditions

Qualifying Conditions Include (but are not limited to):

Cardiology: Dilated cardiomyopathy; Pulmonary artery hypertension; Kawasaki syndrome w/ significant coronary involvement; Transposition of the great arteries with poor ventricular function; Complex congenital heart lesions
Gastroenterology: Congenital biliary atresia; End stage liver failure - post infectious, toxic, or vascular; Short bowel syndrome with total parenteral dependence; Storage or metabolic diseases with organ impairment.
Hematology/Oncology: Chronic congenital hypoplastic anemia (transfusion dependent); Aplastic anemia (including Fanconi’s); Sickle cell diseases (w/ organ impairments or life threatening complications); Severe agranulocytosis; Thalassemia major, Cancers that require ongoing treatment, including chemotherapy, radiation, bone marrow, or stem cell transplant.
Immunology: Congenital immune deficiencies with known limitations on life span, or requiring bone marrow transplants; Acquired immunodeficiency syndrome (HIV infection with symptoms and/or significant immune suppression).
Nephrology: End stage renal disease.
Neurology: Degenerative gray matter disease; Degenerative white matter disease; Spinal muscular atrophy; Muscular Dystrophy (rapidly progressive cases).
Pulmonology: Cystic fibrosis (with moderate to severe progressive lung disease).
Rheumatology: Systemic lupus erythematosus with life-threatening complications; Dermatomyositis; Scleroderma.
Transplants: Bone marrow or stem cell transplant; Solid organ transplant
Urology: Cloacal exstrophy